X by X Bromley - A Community Interest Company
Group Discussion

Annual General Meeting 2018 – Report, Minutes and Three Year Plan

X by X were delighted to celebrate our Annual General Meeting (AGM) on 12th October 2018 at the Civic Centre in Bromley. It was a beautiful sunny day and we had 27 people attend. The meeting was chaired by Stewart Tight.  Below is a summary of the event. To read the full Annual report 2018 and minutes from the AGM 2018 click here.

Members heard about the X by X annual report 2018. The annual review looks at what X by X have done from 2017 – 2018.  by Justine Godbeer – Campaigns co-ordinator and Barry McDonald – Peer Support officer.

George Hanna stepped down as Chair, with Board member Stewart Tight stepping into the Chair role for X by X with a unanimous vote. He gave a brief heart felt speech thanking the board and staff.  We are pleased to welcome Stewart into his new role.

AGM 2018

 

 

 

 

 

Reports and Presentations from the AGM

The future of X by X and Partnership working

A massive thank you goes to our wonderful speakers; Lucy Hamer Patient Engagement and Experience Manager for Kings College Hospital and Penny Dale Governor for Kings College Hospital. Their presentation covered information such as: How to Become a member of King’s, How Voluntary groups can become Associate members of King’s, How to share your views and The quality priorities for the Trust this year. Click here for the full AGM 2018 minutes for more information.

Speaker Lucy Hamer

Find out more on our volunteering page on our website https://www.kch.nhs.uk/about/get-involved/volunteering Watch this space for more volunteering opportunities at the PRUH. Recruitment reopens shortly. You can apply now to volunteer at Denmark Hill.

 

Share your views

We would like to hear your views on what we are doing well and any ideas for improvement. You can also share ideas on the quality priorities for the Trust by sending your comments to kch-tr.members@nhs.net

 

The quality priorities for the Trust this year are:

  • Improving the experience of patients with cancer
  • Improving outpatients experience
  • Improving outcomes for people with heart failure
  • Improving outcomes for people with hip fractures
  • Improving outcomes for people with mental health needs
  • Improving how we recognise and manage sepsis
  • Reducing falls in hospital

 

Penny Dale – ‘I am there to make sure the interests of the public and patients and carers in Bromley are looked after. I have a focus on what is happening in the PRUH and I have a lot to do with the whole Trust.  I always fly the flag for Bromley residents.  The Council Governors are the critical friends of the hospital and we are there as your voice.  It is really important to meet people like yourselves.

Speaker Penny Dale

My role is to engage with the people of Bromley and especially those who have a problem accessing our services. We don’t take up individual cases but we either direct them in the right direction of people they should see. 

 

I do volunteer on a Monday afternoon I am on a ward for elderly patients with varying degrees of Dementia and of Parkinson’s Disease. I see what patients and staff experience and also what the carers are experiencing and that is really, really important to me.

 

The Council of Governors is very underrepresented by people with a disability we don’t have a Governor with a disability it is important, so if you join as a member.’

 

Speaker ‘Stewart Tight spoke on Mental Health issues’

 

Shared his own personal story and the different phases he has found to help describe the different levels of his own experiences with Mental health issues.         

                    

Campaigns and Development Officer Update – by Justine Godbeer

 

Justine announced the good news that Trust for London had renewed X by X funding for another 3 years. This means her current campaigning work and speaking up for Deaf and disabled people, can continue.

 

She also introduced a new part of her role, which aims to upskill two new Mental Health Engagement volunteers (Lucy Tann and Luke Hudson) through training and mentoring from Justine and Stewart Tight. X by X recognises the need for a voice for local people living with Mental Health issues. If you experience Mental Health issues and are interested in speaking up for people living with Mental Health, please contact justine@xbyxbromley.com

 

Discussion and engagement finding

Group 1

We were talking about GP waiting times for support with Mental Health issues and concerned that Mental Health services shouldn’t be ‘one size fits all approach’ regarding depression and anxiety.  Both Mental Health Volunteers have experienced this.

Group Discussion

GPs need to have good knowledge about mental health services and signpost to Bromley Well or Recovery Works and Bromley, Lewisham and Greenwich Mind

*Questions were raised around changes to Oxleas mental health services called the day treatment team in June.

 

*Update on this issue: X by X contacted Oxleas directly and found out that the groups previously provided by the day treatment program still exist, and is in fact are being expanded albeit under a slightly different management structure. 

Oxleas has reassured X by X and members that they will continue to develop an expanded group programme very much based on the day treatment service that will be provided across the whole borough. They have a newly instated SUN (service user network) Groups for people diagnosed with personality disorder as an example of the first stages of developing interventions in line with evidence based practice outcomes in this respect. They will however be continuing with other day treatment type of groups such as: getting creative; in the zone; Bromley wide discovery; nature trail and other recovery and social inclusion groups. These are specifically aimed at supporting service users along the care pathway at all points: inpatient to community; community to primary care; as well as in primary care.

Group 2

 

Some of the areas our group found difficulties were in:

Finding support to get employment

Access to Work being given for one year but then being taken away.  We have heard this happen before and some cases they try to put support in place but then take it away saying by then you would have got used to your job, but your disability does not

Group Discussion

 go away, and the same support is still needed. It was advised that the person who lost their Access to work should contact Bromley Well for advice and support to get it back.

 

 

Fears around transitioning from Disability Allowance (DLA) to Personal Independence Payment (PIP), worries around money being cut, concerns around being disabled and not able to find a job and how people will cope with these possible changes to their income.

Transport – We had good feedback about transport to day services and day opportunities. Dial a Ride was also said to be a good service with friendly helpful staff. Apart from on two separate occasions the service was not good; with a driver being rude and the other incident where a driver didn’t tell anyone they had arrived and then left, leaving the person stranded. We have suggested that if she writes and complains, then XbyX will look into it as part of the Mystery Shopper to see if anything can be improved.

People said they would like to have a hub where they could have social interaction in Bromley so that is needed.

Group 3

Access to Work can be a problem if their package isn’t sorted out properly

Lack of hearing loops in terms of buildings in general not having them and some venues not switching them on or lack of signs saying it is available.

 

GPs have started charging people for anything on their prescription that they can buy over the counter (Even people with a medical exception certificate). It should be means tested because some people don’t have enough money to buy medication.

 

X by X Three Year Plan – Joanne Munn

Every three years, we think about what kind of services we should plan to provide over the next three years. We wanted to give our staff, members, other local disabled people and Carers, as well as local stakeholders a chance to say what was important to them, so we held meetings and sent out a survey.

We collected all the ideas and wrote them into our Three Year Plan 2018 – 2021, which we presented at our AGM.

You can read the Plan by clicking here

At the AGM, we asked people for ideas on what practical actions we need to take that will help us achieve the aims set out in our Plan.

We are now writing an Action Plan to help us track our progress.